Thank you so much for your prayers, for the ways you all have blessed Ian & Larissa and the rest of my family.
As most of you know, I have been writing music for a few years now. From now until the end of 2011, for anyone who downloads any of my music or buys a T-shirt from my website, I will donate all* of the money I receive from every purchase to National Brain Tumor Society and Accelerate Brain Cancer Cure in my dad’s memory. Here are the different ways people can give:
i’m not sure that we have given an update really on therapy, since we were switching to new therapists. we did go to new therapists for a few weeks but are taking a break until after christmas. the therapists will evaluate ian again in january in the hopes of identifying new goals for him.
having a spouse with a disability offers constant temptation to feel guilty for all that i’m not doing for ian, either because of laziness or because i simply can’t fit it into a day. please pray for ian and i that we would receive wisdom in how much we should be pursuing and also that ian would continue to make great progress.
two years ago today, a good man met god. a good man who before and after his cancer diagnosis, had lived to prepare his family and his church for heaven. he left us well, and provided for, and loved. everyone who knew him has felt different losses of him simply not being here with us anymore, but he left us with so very much. mary still carries his counsel in her heart to share with us, ian speaks the same bold truths to me that steve would, ben has his simple faith and dependence in god, caleb looks exactly like him, devon knows god well as he did and lydia treasures her memories of dates and professor kooky stories at bedtime.
after wrapping gifts, hopping into my car to drive to the shower, still no word from ian. maybe he lost his phone. i met up with mary at the shower and started laughing with all of my girlfriends. my worry for ian wasn’t in the way, I just wanted to hear from him. the shower started and we opened with a time of prayer and worship. a song with the chorus of trusting god. trusting god. trusting god. somehow amidst our singing, carolyn, our host, was able to hear her phone ringing. able to give the phone to mary. steve was on the other line. mary reached her arm around me and whispered, “ian was in an accident. he’s in a pittsburgh hospital. we need to go.” then my crying, quick fearful hugs from friends, a car ride to meet steve, questions, questions, questions.
we met steve at ian’s house, and i think that we were all clueless to what we should be thinking or feeling. steve had talked to the social worker from the hospital, the call that no one wants to get but too many people do. all we knew was what mary had already told me. so we started driving the hour long drive. that worship chorus running through my head. my only adjoining thought of please god, don’t let it be his head. anything but his head. i didn’t know anything about head injuries, but i told god that i could handle anything but that.
the hospital came and so did the social worker. and ian’s belongings. and after what felt like years, the news that ian was in brain surgery, had significant brain damage, and we wouldn’t know until surgery was done if he would even last through the night. my wonderful boyfriend, in an instant of distraction while driving to work, was slammed under an SUV and extracted by the jaws of life. who ian was for 21 years was left in the car that was towed off the highway.
david came, my parents and sister came, ian’s family came. all in the first night. we tried to sleep on the floor of the waiting room, but sleep was gone. my mom came with me the first time i went in to see ian after surgery, the only skin i could easily find were his right fingers, which were so close to his poor, injured brain. but he was there. somewhere. and he was fighting.
the next few days are a blur, snippets of memories of people, scripture, prayer, hope, fears, crying. reports that ian was failing three out of five brain activity tests. meeting with the murphy boys, mary and steve to talk about ian’s funeral. we had to prepare. we prayed for miracles but since it was our family, our lives, we had to be ready. ready even though caleb’s words “he’s not dead yet” turned out to be more true than we realized at the time.
the blur continues and i’m sure if i referenced my old journals my memory would be jolted, but one morning, a few days after september 30, a waiting room just down the hall from the first, we were told that ian was over the hump, a hump that we didn’t know existed. overnight his brain began responding. overnight god baffled the doctors. overnight god mercifully answered our pleas. overnight god showed us that he had more plans for ian. we would later find out, four years later, from ian’s brain surgeon, that ian was the sickest patient he had ever seen who lived. the sickest patient. who lived.
five years ago today. one post today on the anniversary does not come near to saying all that needs to be said of god and all that needs to be said of ian and of his family and my hope is that someday we say it in a book. my heart could say 1,000 things but this morning, i’m sitting in our home, drinking tea and smelling baking apple crisp, ian comfortably resting underneath our feather blanket. our dear cousin is here visiting, bringing with her many laughs, and tomorrow caleb will marry our best friend. we have five nieces and nephews, and ian’s company gets to work from our home. and one of us has already claimed his reward in heaven and ian will get there too. and i see that our lives are full. they are sad and exhausting, but they are full. and god is the one who has filled them.
for five years of moving through this with us, thank you.
we spent our day under a tree in our yard. so cozy. i was happy to host a bridal brunch for our dear friend and sister-in-one-week. i love days that are simple and beautiful- so refreshing to laugh with friends and family and just exist together.
as we gathered for worship this morning in church, as children of god, and objects of his love, my heart was drawn to the sadness that still surrounded us. broken and failing bodies, suffering relationships, chronic illness. my church isn’t immune to deep sorrow and loss. god’s children were never promised that. and the more we live, the more we will see this sorrowful pattern. we can’t build walls to protect ourselves against tragedy. we can try to live cautiously, but our actions can’t alter god’s hand. some days i think that i understand the truths in suffering. but most days i dont. but as the our blog title says, now we know in part. our dad, steve, now knows fully. some day ian and i will too. the intersection of god’s sovereign love and our loss will make sense – fully.
until then we have to keep trusting and rejoicing in all that god is, despite what we can’t figure out or know. i have a feeling that we will make our way to heaven very wearied. but that might just be the best way to go.